Event details: Jaxson Flynt was diagnosed with a single gene defect in the MTRFR gene on October 30, 2014. The MTRFR gene mutation causes leigh syndrome, a terminal mitochondrial disease. This causes Jax to be non-verbal, fed through a feeding tube, affects his ability to walk and optic nerve atrophy which leads to blindness. It is caused by a defect in the function of mitochondria within the cells of the body. Our goal is to slow the progression of this disease while working towards a cure for Jax and future generations. This fundraising event directly benefits gene therapy research which looks to be a promising life-extending treatment for Jax who is now 10. All proceeds go to the Hereditary Neuropathy Foundation 501(c)3.